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Ilse

17 articles about babyloss

Baby Loss Awareness Week 2022 – Reflections from Day 1

October 9, 2022

Today is the first day of #babylossawarenessweek2022 and this is how it looks for us. Planned antenatal steroid treatment prior to our little girl being born by elective c-section later this week. The steroids will help her to breathe as her lungs will be less developed at 37 weeks. I have to be in hospital for monitoring as it can affect blood sugar levels and the gestational diabetes. Feeling good though so far – grateful we can do something preventative to help her ?

What you don’t see in this photo though, behind the smile and the growing baby, is the woman I’ve become through #babyloss. I thought I’d post this week with reflections as we approach the day we’ve longed for so desperately *and* tenderly (both can exist together – remember the “&”…)

Today’s reflections: 

? Baby “loss”

I’m actually choosing nowadays to avoid the term “loss” because it sounds careless and less impactful than the reality that our little boy, our first born, died two years ago. It’s uncomfortable to hear, but important to acknowledge the trauma that occurs when a baby/child dies (at any gestation/age). I’m hoping to find the courage to use the language of death in a way that makes it clear that it’s not just “one of those things” and equally to make the whole idea of life & death less scary & unspeakable for the next generation.

? Thinking of George

I’ve been thinking about transforming the conversation of “is this your first?” or “is she an only child?”. I’d love our daughter to tell people with confidence that she has an older brother. I play out people asking her “so where is he today?”…tricky, especially as we personally don’t believe in heaven (she’ll make her own mind up though). I’d love her to say “he used to live in mummy, but now he lives in our hearts and on the wind”. I want to make it tangible and reassuring for her, without telling her something which feels like a fairytale. A tricky journey which will be ongoing, but I’ve got some amazing role models who have managed exactly that so I’m led by them and my thoughtful husband who cares just as much about this as I do.

? Who is this week for?

#babylossawarenessweek isn’t really for parents whose babies have died. It’s for everyone else – the professionals who aren’t equipped with the language that acknowledges and soothes; the people who think it could never happen to them; the friends and family who want to support but don’t know how/what to say. We can gently transform this, in a kind and nurturing way, but it must be done with language, open dialogue and in a way that respects everyone. Some people feel ok to speak up this week, and represent this journey –  we do that on behalf of ourselves and those who don’t feel they can. 

Back to the ultimate luxury of the amazing NHS now…our hospital, the staff and the atmosphere here is so supportive today yet we pay so little for it through our taxes. James and I have spent the morning in awe of the clinical and pastoral care we’re receiving, the environment here and the space to process the thoughts and emotions of a BIG week. 

Thanks for following our journey, being there for us and please don’t be afraid to speak about #babyloss with vulnerability and to truly listen to those who have experienced it.  Not sure what to say? Message me and I’m happy to chat it through anytime (but maybe not on csection day ??) 

Hebridean Way

Could we walk the Hebridean Way?!

May 7, 2021

Re-reading the ‘Change 17 Challenges’ page of this site, I’m slightly smirking to myself…”17km walk along the Jurassic Coast” (still happening by the way); “Walk 17km around the Isle of Barra”…

Written several months ago…in survival mode – where a slight nudge away from stability felt like a giant leap…maybe that was a Covid/lockdown feeling, but more likely a case of “I’ve had enough challenge lately thank you very much”

A shift has occurred recently though. The lead up to George’s birthday on 17th April was tough – I’ve learnt that the anticpation of these anniversaries are often worse than the actual day itself – but then beyond the 17th, I started to feel a little ‘lighter’ – like something was lifting. Hope, maybe. Seeing family recently helped so much – lockdown has been tough, even for this introvert.

Three weeks later, that’s evolved into the start of ‘growth’, I think. I’m feeling more confident to implement new work ideas, have been planning Summer fun, and preparing a brand new Change 17 Challenge!

We far exceeded the 1.7million steps over the 17 weeks from 21st Jan to 17th April, and so our attention has turned to the next challenge…

I’ve been following the daily treks of a few long distance/’thru’ hikers of the South West Coast Path, the West Highland Way, and the monster Appalachian Trail, on Instagram. Each day, I heard a little whisper – a voice deep inside that ushered “I’d like to do a thru hike…and I think…I think I could…” Then that whisper turned into a voice.

James told me to listen, not to ignore a voice like that – wise.

So we’ve been setting about a plan to walk the Hebridean Way, including our special island – Barra. The walk covers 156 miles, from Vatersay and Barra – the most beautiful islands of white sand, turquoise water, and bobs of seals, all the way up through the Uists, to Harris and Lewis – islands of purple and red heather, red deer and eagles. Sounds idyllic! It was – when we drove it.

My planning has given me a kick of a reality check. Expert hikers stating that you need to be “physically fit; psychologically robust and comfortable with complete isolation” – lockdown has had us in training for the last one. Physically fit – I used to be, ha. But I know I can practise for it.

Psychologically robust – hmmm.

Resilient when I need to be? Yes. Always feel resilient? Definitely not. But I’ve done an awful lot of work on this lately, and I’m keen to see where this takes me.

In true Ilse and James style, we said “156 miles doesn’t sound very Change 17 though does it. Let’s make it 170 miles with a few extra miles on Barra”…

The plans are underway – we’re still to decide whether to go the advised south to north route (with the SW wind behind us and starting in Barra), or do what our hearts say and go north to south, ending up on Barra – into the wind and the sun, if it shines. Unless we can find a way of looping the walk, I think we all know where the finish point needs to be.

So much to do, so much to learn – from my point of view:

  • Navigating with OS maps – beyond what I’ve done with my KS2 class.
  • Managing the feet – doing everything possible to avoid blisters, and trench foot, from walking through the peat bogs.
  • Packing light – 18kg max or as James says “You want it, you carry it”
  • Walking with that ‘light’ rucksack
  • Wild camping – pitching a tiny tent in the rain, getting comfortable with being uncomfortable (the theme to the whole challenge?)
  • Eating what’s available (eating more calories isn’t going to be a problem, let’s face it)
  • Boiling, filtering and sanitising water from streams
  • Speaking to myself (and James) kindly – managing the chimp, believing I can, and anticipating the tough times.

And that’s really just the start. I switch from thinking this is a physical challenge to realising the biggest challenge will be the mental, emotional side. “Feel the fear – and do it anyway”…”Yes it’s tough – keep going” …Somewhat of a change from the Ils that sat and watched James surf on George’s birthday, because getting into the cold water felt like a challenge too far.

But I’m bloody well going to try my best.

17 articles about babyloss

The comfort of a bear…

January 25, 2021

This is Ted – one of a pair of teddies given to us in the hospital – one for George, and one for us. Ted’s brother stayed with George – in his crib at the hospital, and has been cremated with George. I guess like a guardian…

Matching bears, keeping everyone in our family safe and comforted – donated from Aching Arms, one of the charities we’d like to support with our fundraising. Ted and his brother, have been significant in our journey of grief and healing.

I’d ask you to reflect back to your childhood, or consider your babies/toddlers, and how important a cuddle from a teddy bear is for comfort and soothing. ‘Ted’ has been exactly that for us.

He came home, with one of George’s blankets, and has been there for cuddles (yes, I’m 39 and cuddle a teddy bear sometimes – try it, I don’t think you’ll be disappointed!) and to remind us that his ‘brother’ is looking after George.

In many ways, Ted almost represents George. Cuddling a bear instead of your baby is no comparison, but it’s really the only option we have. And Ted has received many many cuddles…he’s a hero in our house – and we often joke that he’s going to need his fur, his stuffing, his arms, and his legs replacing eventually…until really he’s a different bear (Trigger’s broom?)

I remember waking up in the middle of the night, in hospital, and looking at Ted sitting there (exactly as he is in the first picture above) and telling him “You’ve got a big job on your hands – looking after us”. He was put up on a pedestal, and hasn’t let us down yet.

For comparison, here’s some pictures of how he looks now – I think you’ll see he’s been held tight! Ted has his own personality, often going on his own little adventures (when we can’t find him), or looking particularly proud of himself/grumpy (usually in line with how we feel). Ted came away with us when we went camping last July, our first time away since George was born, and a comforting reminder that George was with us on our travels in Ovii.

Unsurprising then that we’d like to support Aching Arms to send more bears out to bereaved parents.

Aching Arms says the benefits of donating a bear to bereaved parents are (https://achingarms.co.uk/working-with-hospitals-new/):

  • You are acknowledging the life of their baby and recognising the significance of their loss in a society that prefers not to talk about it
  • You know parents have left with valuable information on where to get immediate help
  • You are providing a comforter that can be held by the mother (and father) in times of distress

So far, they’ve donated 15,000 bears to hospitals around the UK.

It’s very sad that so many bears are needed, and this doesn’t even come close to the number of babies lost during pregnancy and birth. Tommy’s website demonstrates the stats for 2018 – these numbers are PER DAY in 2018.

We hope our fundraising can support more parents to be comforted by the hand of friendship from Aching Arms, and cuddles & guardianship from their own bears.

In future, I’ll introduce you to Buns, Ted’s mate. But Ted gets the limelight for now 🙂

If you feel you can support us to raise funds for Aching Arms, please donate here.

Change 17

Welcome to Change 17

January 24, 2021

Our Hearts Sing Here…making 17 Changes.

Why 17?

George was born on 17th April 2020,

at 17 weeks (+1).

It also takes 17 muscles for us to smile.

It’s pretty clear to us that 17 is George’s number.

James and I have been supported with so much professional advice, care and kindness. The bereavement midwife team at Dorset County Hospital took care of us from the moment we lost George, and now, 9 months later, are still doing so.

The team have set up a group called the Forget me Not group, which allows parents who have lost babies, at any stage, to meet in a safe, nurturing environment and share their experiences with people who understand. We have also joined several groups online, for various support/medical reasons, and we realise that this kind of support is not available everywhere – in fact, it sadly seems rare that bereaved parents are supported in the way we have been.

Some stand out people and moments…

Sarah, our bereavement midwife – who knew how to speak to us before, during and after delivery – using George’s name, talking to him about his Mummy and Daddy, firmly telling us that we are still parents.

Clemmie, initially one of our sonographers, now our friend, who at our 12 week scan wrote “Can’t wait to meet you Mum and Dad!” on the best scan picture – precious. Clemmie also visited us in the Forget me Not Suite to meet George, and even commented on how muscular his little arms looked – proud moments!

Sophie – one of the two midwives who led the bereavement team at the hospital – visiting us in the Forget me Not Suite, and talking us very carefully and gently through what would happen after leaving George at the hospital, where George would stay before the funeral, and giving us information packs and booklets to support us in knowing there is always someone to talk to. Sophie also gave us her mobile number, and told us to text with any questions, worries or concerns – at any time of day and night. Sophie and the other bereavement midwife, Clare, contacted us every couple of days after we arrived home, to ask how we were doing, if we needed anything, and to reassure us of the support we’ll receive in future pregnancies (we felt so fearful of the future, even as soon as we got home…). Sophie helped to arrange the funeral for George (which the hospital also paid for) and has since supported us by checking in and asking us about our on-going medical situation.

Sam – the funeral director that works with Dorset County Hospital to arrange sensitive funerals for precious babies. The moment we met him, we knew he’d look after our boy. He carefully placed the shells, letters and the little kite I’d made into George’s coffin, and didn’t even flinch when I asked him to put the string of the kite in George’s tiny hand. He found us a private space to spend time with George, as we didn’t want a ‘service’ as such (limited because of Covid lockdown but it also felt fitting with just the three of us). James had said that he had been looking forward to adventures in Ovii (our Land Rover Defender 110) with George. Sam suggested that instead of George travelling in his car to the crematorium, James could drive him in Ovii. What an honour…

Aching Arms – a charity that supplies teddy bears to hospital to comfort bereaved parents. George’s bear, and his twin ‘Ted’ provided such comfort to us in dark moments and days. ‘Ted’ now stands as a symbol of George to us – when we wish we could give George a cuddle – we cuddle Ted. Of course, George would have had his very own bear when he should have arrived home in September, so Ted brings a comforting alternative.

Why call our mission ‘Change 17’?

We hope to share some of the positives of our story, to highlight how life-changing a simple word, phrase or action can be to bereaved parents.

Throughout our loss and grief, we have felt grateful for the services and communication we’ve received. Other bereaved parents should receive this too.

The goal of Change 17 is to improve services and communication for bereaved parents. In talking to the midwives, we realise that this isn’t common practise and will differ from area to area. But it is evolving – the hospital services, funeral directors and charities need help to improve the support they can provide.

Outcomes that will help us achieve our goals:

Outcome 1

Present our story to at least:

  • 17 individuals/groups of midwives
  • 17 A&E department doctors and staff
  • 17 funeral directors
  • …to share how well we’ve been supported, in the hope that this becomes common-place for many more parents in the future. We aim to either do this in person, by letter, or via video.

Outcome 2

Write 17 articles for Change 17, indicating good practise in the hope for positive change. Please share these as widely as possible.

Outcome 3

Support our bereavement midwives, Sophie, Clare and their team in the hospital for future change…we’re still working out the details, but we may be able to fund:

  • additional employment days for them (they both work on the bereavement care for just a couple of days per month),
  • training for the midwife team,
  • or equipment for the Forget me Not Suite.

Outcome 4

Fund at least 17 pairs of bears from Aching Arms for future bereaved parents and their babies.

How we will fundraise for Change 17

James and I got together as adventurous spirits, wanting to take on challenges and adventures. We’ve faced some mighty challenges in the last few years, but would prefer our future challenges to be for good….we will fundraise by completing challenges, and inviting you to join in – ones that really make our ‘hearts sing’ – see our page about challenges for Change 17 for more details of how we’ll be fundraising.

It’s taken a while for us to get our heads around how, but we’ve finally found our own, fairly unique way to raise money to help others who are also experiencing baby loss, to raise awareness, and to honour George.

We will be asking for donations, and we will be completing multiple challenges. BUT, we don’t expect people to donate multiple times. If any of our challenges inspire you to donate, then please do. But do not feel pressured to. Support comes in many forms, not just donations. One alternative to a donation would be for you to share our story – it’s a sad story, but it has so many positives too, and so many lessons we can all learn from.

What will fundraised money be spent on?

Fundraised money will be spent on achieving our four main outcomes (above).

We anticipate there being only minimal costs attached to Outcomes 1 and 2.

Outcomes 3 and 4 will be where most of the fundraised money will be spent. For example, a bear for a family who have lost their baby costs £15.

£30 – £500 funds ongoing awareness training programmes for hospital staff.

When we organise these, we will keep this site updated.

How you can support us:

You can support us by sponsoring any of our Change 17 Challenges, which we will update as we go – click here to find out more

If you are able to support Change 17, you could be changing the course of grief for bereaved parents. Lots of you have commented that we’re so positive, strong and are pleased we have been so well supported – aside from our INCREDIBLE family and friends, the midwives, funeral director, the Forget me Not Suite and Ted have made all the difference. We’d love George’s legacy to support other parents in this way.

Change 17 – The Challenges

Putting our finger on one particular challenge for fundraising has seemed difficult…so we’ve come to the conclusion that our ‘heart sings’ with the number 17, and our ‘heart sings’ when we talk about George to our support community – so we’ll combine the two and get our whole community involved in Change 17 – The Challenges!

We have literally hundreds of ideas for healthy, positive, fun fundraising challenges involving the number 17 – but we can’t do them all at once, and right now, with Covid-19 restrictions, we’re limited! So, we’ll be releasing our challenges as and when we think it’s appropriate. We’ll start with Challenge 1, then update you as we go. YOU can get involved with almost all of the challenges yourselves…you could even create your own Change 17 – Challenge!

The Challenges

Challenge 1 – 1.7 millions steps for George

A year on from the 17 weeks that George was growing, we aim to walk 1.7 million steps – to honour our boy, for our own health and wellbeing, and to promote Change 17.

This challenge will run from 21st January 2021 (a year since we first ‘met’ our boy with our positive pregnancy test), to 17th April 2021 (a year on from George’s Birthday). We’ll keep our social media updated with our progress.

Now, broken down between James and I, that fares at 100,000 steps per week – or 50,000 steps each per week.

Doesn’t seem that many when we’re encouraged to walk 10,000 steps per day. However, we’re currently both working at home, and even with a decent walk each day, are averaging 5k steps in the time we can afford. We’d love to smash the goal of 1.7million steps in 17 weeks and complete 1.7million each – but we actually think that the main challenges will be:

Consistency – not just in walking, but in tracking our steps as well.

Time – time away from the dreaded laptop to get out in nature (hopefully during daylight), is a challenge in itself right now.

Weather – we don’t shy away from bad weather, but motivation wise, it plays a part.

So, 1.7 million steps in 17 weeks is the goal.

Would you like to sponsor us? Please donate here.

Would you like to join in? Walk your own 1.7 million steps over 17 weeks (before April 17th 2021)…email ilse@myheartsingshere.co.uk or message us to keep us updated!

Future Challenges still to come:

Some fun options (when the world opens up a bit):

Seventeen challenges we’d like to complete over a long-period of time …will you sponsor us to achieve any of these? Some are big, some are small, some will take us a while, some may be combined, and some will lead to greater things…

  1. Visit 17 new locations around the UK and Ireland for at a full day – likely camping in Ovii
  2. Walk 17 kilometres around the Isle of Barra
  3. Train to eventually swim 1.7 miles in the sea
  4. Grow 17 different fruits and vegetables down at Lottie (the allotment!)
  5. Swim in the sea, every week, for 17 weeks
  6. Grow 17 different types of flowers down at Lottie
  7. Complete 17 minutes of meditation per day for at least 17 days
  8. Give 17 hours to voluntary work
  9. Forage and consume 17 different wild foods (with advice!)
  10. Gift 17 books that we would recommend
  11. Run 17 miles in a week
  12. Catch 17 fish to bbq on the beach – perhaps not all at once…
  13. Spend 17 minutes per day in nature for at least 17 days
  14. Watch 17 sunsets on Chesil beach
  15. Stand up 17 times on our surfboards…in the water
  16. Learn 17 different yoga/pilates moves and combine them in a flow
  17. Identify 17 different natural things, with a detail about each one – shells, seaweed, birds, plants and trees

Feel free to join us for any of these challenges – virtually or in person!

Join us with some bigger challenges:

Let’s Go Fly a Kite (Virtual – anytime in 2021)

We’ll be raising awareness for Baby Loss, Cervical Incompetence and for Change 17 by flying kites for George in 2021. Included in this is hopefully learning to kite-surf…

If you’d like to join us in flying a kite (doesn’t have to be kite-surfing – a regular kite will do!), to recognise anyone who has lost a baby or child, and to raise awareness, then fly your kite anytime in 2021…please take a photo or video and send it to us so we can celebrate it!

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17km walk along the Jurassic Coast

It might be wet and windy, but the views will be stunning. This won’t be an easy walk, but it will mean you get to walk part of the South West Coast Path. People joining us can either donate to join, or raise money themselves for our charitable organisations. Choose whether you’ll walk the whole 17km, or any increment of 1.7km. As we’re unsure of lockdown/tier measures, we’ll update you on the date asap.

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Change 17 Supper Club

James LOVES to cook. He will be creating a 17 course (including drinks and canapés) taster menu for anyone wanting to join us down here in Dorset/online. Details to follow!

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Purchase from our Online shop – once it’s up and running

Just little things that have been hand made…watch this space!

Thank you so much if you’re able to support Change 17.

Click here to find out about Change 17 Challenges

Click here to donate to sponsor one of our Change 17 Challenges on our Just Giving page